To promote international collaboration among researchers, clinicians, allied health professionals, JIA patients and their families to increase knowledge and improve research in juvenile idiopathic arthritis (JIA)
To serve as a platform for collaborative research projects development and grant request
Apply the PReS 3-pillar structure to JIA. In the first few years of the JIA WP activity, this will have particular focus on non-systemic JIA and outcome assessment.
Work closely with:
PReS MAS/sJIA WP
PReS Imaging WP
PReS Uveitis WP
Pediatric Rheumatology Care and Outcomes Improvement Network (PR-COIN)
Outcome Measures in Rheumatology (OMERACT) JIA Working Group
Health Professionals of PReS (HP-PReS) Committee
European Network for Children with Arthritis (ENCA)
EMERGE
Thecomposition (until election at first WP meeting)
Chair:
Alessandro Consolaro, MD PhD Associate Professor of Pediatrics, Istituto Giannina Gaslini and University of Genova, Genova Italy (elected on 21st September 2022)
Secretary:
Veronika Rypdal MD PhD, postdoctoral researcher, Dep. of pediatrics, University Hospital of North Norway, Tromsø, Norway (elected on 21st September 2022)
Representative for research pillar:
Klaus Tenbrock Prof. Dr. med, Department of Pediatrics, Translational Pediatric Rheumatology and Immunology, RWTH Aachen University, Aachen, Germany Pediatric Rheumatology, Inselspital, University of Bern, Switzerland.
Representative for Education pillar:
Filipa Oliveira Ramos, MD, PhD. Head of Pediatric Rheumatology Unit, Rheumatology and Pediatric Department, University Hospital Santa Maria, Lisboa Professor of Rheumatology and Pediatrics, Faculdade de Medicina, Universidade de Lisboa, Portugal.
Representative for Clinical Affairs pillar:
Flora McErlane MbCHB MRCPCH MSc, Greath North Children’s, Newcastle Hospitals NHS Foundation Trust, Newcastle, UK
EMERGE representative:
Achille Marino MD, PhD. Unit of Pediatric Rheumatology, ASST G.Pini-CTO, Milan, Italy. Yagmur Bayindir, MD. Department of Pediatric Rheumatology, Hacettepe University, Ankara, Turkey.
AHP representative:
Daniela Ghio, PhD, CPsychol. Division of Psychology & Mental Health, School of Health Science, Faculty of Biology, Medicine and Health, University of Manchester, Oxford Road, Manchester, UK.
Patient/parent representatives:
Christophe Normand. MCI Secretariat, European Network for Children with Arthritis (ENCA), Geneva, Switzerland.
Plannedprojects
Development of recommendations on physical activity in JIA
Development of guidelines for scoring the Physician Global Assessment (PGA) in clinical trials and routine practice, in collaboration with PR-COIN (application to PRINTO-PReS grant)
