PReS -- English: JDM working party

Juvenile dermatomyositis (JDM) working party

Bring together clinicians and JDM researchers to increase knowledge and facilitate research in JDM, working collaboratively on an international platform.
Apply the PReS 3-pillar struture to JDM: advancing basic sceince, clinical care / clinical science and education / training.
Work closely with other working parties and EMERGE on shared initiatives.
Utilise published standards of care in JDM and work with patient / parent groups to promote good practice and disseminate knowledge.

Number of members: 254 members

Chair:
Charalampia Papadopoulou (elected on September 2023)

Secretary:
Silvia Rosina (elected on September 2023)

Other core members:

Representative for basic science pillar: Saskia Veldkamp / Meredyth Wilkinson
Representative for clinical care and clinical science pillar: Rebecca Nicolai
Representative for the education/training pillar: Brigitte Bader-Meunier
Representative for EMERGE: Raquel Campanilho-Marques (Portugal)
Allied Health Professional Representatives: Sara Rostlund (Sweden) and Mette Nørgaard (Denmark)
Patient/parent representatives: Joanne Swan (Scotland), Hanna & Katie
Liaison for cooperation with CARRA: Charalampia Papadopoulou
Past Chair: Liza McCann
Past Chair: Helga Sanner
Past Secretary: Meredyth Wilkinson
Past Representative of education: Raquel Campanilho-Marques

The WP arranges a meeting annually at the Paediatric Rheumatology Congress; members are invited by e-mail. Open invite – all welcome.