News from PReS scleroderma working party
Date: 12.12.2023
The PreS scleroderma working party are pleased to announce newly elected chair (Associate Professor Clare Pain, Alder Hey Children's NHS Foundation Trust, Liverpool, UK) and secretary (Associate Professor Giorgia Martini, Paediatric Clinic, University of Udine, Italy).
Lead of research pillar is Ozgur Kasapcopur, training and education Edoardo Marrani and clinical care Ivan Foeldvari. We have elected two EMERGE representative Aybuke Gunalp and Francesca Tirelli.
We are very keen to increase both allied healthcare professional and trainee input into the WP as we develop our goals for 2023-2026. We will be hosting zoom meetings throughout the year which are open to all members of the WP. Please email Giorgia.martini@uniud.it if you would like to be on our mailing list.
In Rotterdam, we heard about experiences of fat grafting from Ivan Foeldvari that also proposed a retrospective case collection on the use of biological agents in Localized Scleroderma. Edoardo Marrani and Clare Pain presented a multicentre study project aimed to collect clinical data on eosinophilic fasciitis, a rare form of Localized Scleroderma. We successfully held the first hands-on workshop in paediatric capillaroscopy which was attended by over 30 people from many countries.
