Web-survey on MAS treatment
Date: 10.10.2023
Please take this survey before 22 October to contribute to the METAPHOR project to capture the current real-life experience in Macrophage Activation Syndrome (MAS) treatment worldwide.
We are happy to announce that, in the framework of the METAPHOR project (PIs Dr Francesca Minoia and Sebastiaan Vastert), the PReS MAS/sJIA Working Party, in collaboration with PRINTO, has developed a web-survey to capture the current real-life experience in Macrophage Activation Syndrome (MAS) treatment worldwide and to understand the major unmet needs from physician and patient perspectives, wth the final aim to foster a uniform clinical approach to such disease.
The survey takes only 10-15 minutes and will be open until Sunday 22 October 2023.
To be as much representative as possible participation of all of you is needed!
As PReS member you should have received an email invitation to participate by PRINTO.
Please check your inbox email and, if you did not receive any invitation, please contact PRINTO at printo@gaslini.org to participate
Thank you very much for your support!
Francesca Minoia and Bas Vastert, on behalf of all the METAPHOR project team
