Education

WELCOME MESSAGE

We are delighted to announce the first PReS Educational Course on Juvenile Idiopathic Inflammatory Myopathies (JIIM), to be held as a hybrid meeting on 7th-8th September 2023 at the Instituto de Medicina Molecular, Lisbon, Portugal.

We warmly welcome participants to attend face to face or virtually. The course will cover the pathogenesis, diagnosis and treatment of JIIM, and include workshops allowing candidates to increase competence completing muscle strength testing (MMT8 / CMAS) and skin scores with hands on practice for those attending face to face. Speakers include international experts in JIIM. We welcome the submission of interesting clinical cases, which will be discussed in interactive sessions and ask for abstracts to be sent to pres.jdm.wp@gmail.com by 10th July 2023. For further details and registration, please refer to the full programme.

Kind regards,

 

Raquel Campanilho-Marques (JDM WP Education Lead) and Liza McCann (JDM WP Chair) on behalf of the PReS JDM Working Party and PReS secretariat.

 

Register

 

Full programme

 

COURSE DESCRIPTION

LEARNING OBJECTIVES

This course will cover the current state-of-the-art on

• Juvenile IIM immunology and pathogenesis
• Workshop on muscle and skin scores application
• Moving from clinical trials to early treatment to treat-to-target
• Handling of refractory cases

COURSE CERTIFICATION

A certificate of attendance will be supplied and send by email to all participants.

COURSE EVALUATION

You will be kindly asked to evaluate the course with respect to educational content, course organisation and venue.

ORGANISATION AND COMMITTEE

 

SCIENTIFIC COMMITTEE

Liza McCann (Chair of the JDM-WP)

Meredyth Wilkinson (Secretary)

Raquel Campanilho-Marques (Education and Training Lead/EMERGE representative)

Charalampia Papadopoulou (Clinical Care Lead)

Saskia Veldkamp (Basic Science Lead)

Helga Sanner (Past Chair)

Ovgu Kul Cinar (Trainee representative)

Sara Röstlund (AHP representative)

Mette Nørgaard (AHP representative)

Joanne Swan (Parents representative)

Maria Alice Gouveia (Patients representative)

 

SPEAKERS

Liza McCann                                                    Sue Maillard

Meredyth Wilkinson                                       Clarissa Pilkington

Raquel Campanilho-Marques                         Caren Landes

Charalampia Papadopoulou                           Rita Pimenta

Saskia Veldkamp                                             Ash Merve

Helga Sanner                                                   Sarah Tansley

Ovgu Kul Cinar                                                Hanna Kim

Sara Röstlund                                                 Cláudia Brazão

Mette Nørgaard                                              Maria Alice Gouveia

Angelo Ravelli

ORGANIZERS

Raquel Campanilho-Marques with the support of the PReS JDM WP core group and PReS secretariat.

ABSTRACT SUBMISSION

For abstract submission, please send an interesting clinical case illustrated in a few slides. These cases will be discussed in interactive sessions. Send your abstract to pres.jdm.wp@gmail.com.

DEADLINE: July 10th 2023

 

COURSE PROGRAMME:

DAY 1 – SEPTEMBER 7th 2023

14.00 - 14:20 Course opening and Introduction 

• Angelo Ravelli, Liza McCann and Raquel Marques

14.20-16:00: Session 1
Chairs – Meredyth Wilkinson and Charalampia Papadopoulou

• 14.20-14.40: How to diagnose IIM: pitfalls and mimicking diseases – Liza McCann
• 14.40-15.00: Classification and epidemiology of IIM – Helga Sanner
• 15.00-15.20: Measurement tools in Juvenile Dermatomyositis – Angelo Ravelli
• 15:20-15:40: Reference guide to interpretation of Myositis Specific Antibodies – Sarah Tansley (remote)
• 15:40-16:00: Histopathology in juvenile Idiopathic Inflammatory Myopathies – Ash Merve (remote)

16.00-16.30: COFFEE-BREAK

16:30-18:30: Session 2
Chairs – Ovgu Kul Cinar and Helga Sanner

• 16.30-17.00: JDM pathophysiology: innate versus adaptive immunity - Saskia Veldkamp
• 17:00-17:30: JDM and IFN dysregulation - Meredyth Wilkinson
• 17:30-18:00: Laboratory tests and biomarkers – Saskia Veldkamp
• 18.00-18.30: Imaging in IIM - Caren Landes (remote)

CONCLUSIONS OF THE DAY

• Liza McCann

 
DAY 2 – SEPTEMBER 8th 2023
09.00-11:00: Session 3: Disease activity scores application
Chairs – Cláudia Brazão and Saskia Veldkamp

• 09.00-09.20: Manual Muscle Testing (MMT8 and MMT3) and Childhood Myositis Assessment - Sara Röstlund, Mette Nørgaard and Sue Maillard
• 09.20-09.40: Skin involvement in JDM – Raquel Marques and Rita Pimenta
• 09:40-10.00: Exercise training in JDM - Sue Maillard
• 10.00-11.00: workshop (hands-on) with patients on muscle (MMT8 / CMAS) and skin scores (CDASI, CAT, sDAS) application - Sara Röstlund, Mette Nørgaard and Sue Maillard (Physiotherapists); Rita Pimenta and Cláudia Brazão (Dermatologists)

11.00-11.30: COFFEE-BREAK

11.30-13.15: Session 4
Chairs – Angelo Ravelli and Liza McCann

• 11.30-12.00 – Severe form presentations of IIM – Clarissa Pilkington
• 12-12.30 – Lung involvement in IIM: a clinical perspective from presentation to management - Charalampia Papadopoulou
• 12.30-13.00 – How to manage calcinosis – Ovgu Kul Cinar

• 13.00-13.15: Clinical Case 1 – Margarida Faria

• 13.15-13-30: Clinical Case 2 – Teresa Melo

13.30-14.30: LIGHT LUNCH

14.30-16.45: Session 5
Chairs – Raquel Marques and Clarissa Pilkington

• 14.30-14.45: Patient perspective – Maria Alice Gouveia 
• 14.45-15.15: Long term outcomes – Helga Sanner
• 15.15-15.45: Overview, evidence for & future use of JAK inhibitors in JDM - Hanna Kim (remote)
• 15.45-16.15: Treat-to-target approach on IIM - Angelo Ravelli
• 16.15-16.30: Clinical Case 3 – Bianca Correia
• 16.30-16.45: Clinical Case 4 – Carolina Zinterl

16.45-17.00: EVALUATION OF THE COURSE AND CLOSING REMARKS

• Angelo Ravelli & Raquel Marques

 

GENERAL INFORMATION

CONTACTS

Registration enquiries: pres.reghot@mci-group.com

Organizing enquiries: pres.jdm.wp@gmail.com

COURSE VENUE

Venue: Instituto de Medicina Molecular – room 58 - https://imm.medicina.ulisboa.pt/

Location: Lisbon - Portugal

COURSE OPENING & CLOSING

Opening:         September 7th - 14.00h (registration open from 13.00)

Closing:           September 8^th – 17.00

PARTICIPANTS

Limit of participants attending to face to face meeting – 50

Limit of participants attending virtually – unlimited

LANGUAGE

The official language of the Course will be English.

COURSE BADGES

A badge will be provided on-site together with the Course kit. Participants are kindly requested to always wear their name badge during the Course.

Participants attending virtually are asked to have their Course Registration name clear when in the virtual waiting room before joining the meeting.

REGISTRATION FEES

Anyone interested to attend is invited to register for the course. You will be requested to indicate whether you plan to attend physically in Lisbon or virtually via Zoom.

Registration fee for face-to-face attendance includes: participation in the scientific sessions, hands-on workshop, course kit, certificate of attendance, lunch, coffee breaks: 275 euros

Registration fee for virtual attendance includes: participation in the scientific sessions, virtual access to workshop, certificate of attendance: 225 euros

REGISTER

An invoice will be issued as written confirmation of your registration by the Organizing Secretariat.